Friday, April 3, 2009

only read while listening to soft piano. also read outloud. with the lights dimmed.

I really hoped that last visit was it, the visit where the doctors couldn't really put their finger on what was wrong with me after a week of unnecessary tests, several days on the 'no eating' diet, a melee of doctors that communicated solely with rocks and birds, certainly not their colleagues or me - and so they just kind of threw out some educated guesses as to why my belly has become a constant source of brutal misery and sent me home. And things kind of just slowly festered, until I found myself slithering through lab on my belly, pulling myself hand over hand to whatever destination because walking really hurt that much, assuring my labmates that no - ive gotten quite used to being in this much pain so its kind of just normal now, thanks for the concern though, try not to step on me as you guys just ""walk around."" I'm just going to roll my way to the microscope room now where I have to sit unfathomably upright for hours and count intestinal tumors.

I've been on this mission to not let whatever these doctor inspired 'educated guesses' that are attempting to take over my life, not take over my life. I'm really working hard to ignore the fact that I'm actually really effing sick, instead I am marching full speed on with my life in this senseless stubborn brattiness refusing to succumb to the absolutely immense weight of how sick I really feel. Thinking if I give in just a little, I might never again be able to get back up. And not being tough is just not an option ever really. Secretly, all I really want to do is take turns lying either curled up on my couch or in my bed, with my macbook, and the cats, softly whimpering, just enough so that I still look pretty and huggable while im crying and not a big mucus sobbing snot affair, and maybe I could say something heartbreaking and kind that would cause whomever was watching to tear up a little also, and for a moment they would really understand the injustice that comprises the brutal senseless shit that really great and A+ people like me have to endure.

This secret fantasy decidedly does not involve straining at a microscope, attempting to walk, attempting to joke around, attempting to feel bad for someone who thinks their cold is killing them, attempting to care about anything really at all, and constantly telling everyone that I am perfectly capable to be carrying out the way that I am. I am so done with this facade of oh guys im not really that sick routine, sure I'll run here and there and take care of all your trivial needs.

So this morning, I was almost relieved to wake up with a bowel obstruction knowing that it would land me back in the hospital where I can finally take a few days off to rest and be the recipient of sweet sweet dilaudid - the wonder drug that cures all my mental and physical ailments in convenient 2mg 2 hour installments. Especially convenient this morning was the small bowel study I had scheduled for 9am which would certainly hasten the process of being admitted. Arriving in the basement of the women's hospital sufficiently comforted by maybe too many percocets, I eagerly told the technician that I was suffering from certain bowel obstruction - as to which he looked at me, practically skipping down the hallway with glee, with complete skepticism. Four very lousy hours of laying on a metal board later, percocets long worn off, I was finally declared blocked!! I was thusly whisked upstairs to the GI clinic where I was further whisked into the supreme comfort that only dilaudid can so whiskingly whisk into one's veins in a very mere and modest 2 mLs. I was so relieved I would finally have time to get some R&R at the excuse of being bed ridden in a hospital, where I pictured myself thumbing through magazines, leisurely watching daytime tv, chatting with the nurses, sun shining through my windows, god reaching down and pushing my dilaudid button for me....yes it would be *gloroious* -a real break where I could be sick in peace and whimper pitifully (but keeping it delicate and poetic).

so. yeah. I sure as hell got the eff what I wanted. This was last Wednesday. (I am typing on Friday, like 10 days later Friday, like, two episodes of lost later, like, 10 GIGANTICALLY LONG ARDOUS MIND KILLING DAYS). The doctors decided I needed more surgery (kind of saw this coming) - buuuttt, its mostly a minor two hour affair they promised, we'll just tidy up a few problem adhesions while we share warm stories of past xmas parties over my comatose body kind of blase run of the mill procedure.

Six hours later I wake up in some ungoldy agonzing pain where my surgeon declared my abdomen an absolute brutal battlefield and it was unheard of that anyone could possibly form that many adhesions post operativley in just two months. Well. I am a fucking miracle guess what. They were really impressed with the complete and utter mess of networked tissues that I had formed. So being a long and complicated surgery, I have been in here for a long and complicated post op stay - and I really just don't even know how I make it through each minute anymore.

The complications range from persistent fevers topping out consistently at 104- 105, profuse vomiting, where they eventually shoved an NG tube down my throat to cease said incessant vomitfest (Read:lubed a honking peice of gigantic pipe, shoved it down my nose , threaded it through to my belly, and have been sucking out my stomach contents that don't look so very unlike what one would find in clogged gutter detritus- cockroaches, wet leaves, dead spiders, that frisbee I lost when I was 9, etc - fascinating to watch though) ANYWAY. I would now like to continue on complaining on the subject at hand. The pain is monstrous, the back pain from laying in this bed is unbearable, I have swollen body parts that are hideous enough to make children cry, I had an internal catheter installed in my arm that travels to my heart yesterday, a sort of - permanent IV so they can feed me food via TPN b/c I haven't eaten a non vomited up food substance in over a week, two blood transfusions, and a ppaarrttrriiddge in a peeaarrr treeeeee.

The doctors still don't really have any consensus as to why I'm having all of these complications. They have a lot of ideas, but I have yet to see where they are logical, effective, and most of them don't even get acted on - I mostly think they are amused watching me rot here in this bed (they make their rounds at 6am to boot).

So, instead of having my hoped for little teary eyed sessions of 'man guys this is kind of the pits' cutesy cries, I have been having heaving pillow soaking gallon snot producing attacks....usually these are followed by my jamming on my dilaudid button waiting to become mentally comatose again. I have flipped through no magazines. I'm cranky to the nurses. The TV blows. I still can barely walk. My belly still fucking hurts, my head is positioned by a gigantic fucking window so I can remind myself daily that I'm in prison. My IV pole grows larger everyday, no literally they put a new piece of equipment on it like everytime I turn around- reverse nurse Jenga, honest to god. and having to unplug three different pumps, my ng tube, wrap 6 wires and my pain pump, everytime I want to walk 6 feet to the bathroom is RIDICULOUS. Then haul all that shit over to the sink. Pick at some new pimple. Get all the way back to bed, hook everything back up. Climb in. And then realize. in horror. that I forgot to wash my hands. I may or may not rengage in a crying jagg that my neighbors can hear. But I think tears are good for sterilizing or something?

Now I fantasize about being back in lab and having a grad student gracefully float into my bay with a box of Dunkies and saying Lisa I picked out your favorite, and also, I have just a few samples of intestine if you wanted to count them? and her eyes would twinkle. and my eyes would twinkle. and we would share a doughnut moment while gazing at one another, endulging in silly light hearted tales that would cause the people overhearing to smile and shake their heads. and I would tell her I would be delighted to count tumors as I loving licked the chocolate icing from each of my nonswollen, non bruised, unfinger pricked, unscathed, hand washed fingers. And I would walk down to the scope room, with a little whimpering cry, and it would look pretty, and genuine, and the sun would reflect just right off my face - and the tears would be for happiness this time, because I just ate a fucking doughnut and its not causing me to double over and writhe around in agonzing pain, because IM LIVING LIKE A NORMAL HUMAN BEING DOES EVERYDAY. except I won't be taking it for granted. suckers.

I.can't.take.this.anymore.

1 comment:

Anonymous said...

Lisa,
It's your cousin Jenna here. I know there's not really anything I can say to make you better, but I'm so sorry that you're going through this. I want you to know that we're all thinking of you down here in Florida, and missing you, and wishing you would start feeling better.
Love you.